CLINUVEL PHARMACEUTICALS LTD is a global biopharmaceutical company focused on developing and delivering treatments for patients with a range of severe genetic and skin disorders. As pioneers in photomedicine and understanding the interaction of light and human biology, CLINUVEL has developed educational resources to share and broaden our knowledge…

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Question one of seven:

How many people are estimated to be affected by erythropoietic protoporphyria across the globe?

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About this questionnaire

The questions in this video will focus on the rare metabolic disorder erythropoietic protoporphyria (EPP), its causes, symptoms, diagnosis, and the impact it has on patients who have the condition.

The questions will challenge your understanding of the topic and we will provide links at the end to help you discover the topic in greater depth.

Please note that any information you provide will be retained in the strictest confidence. For our privacy statement please visit www.clinuvel.com/privacy-policy
Question one of seven:

How many people are estimated to be affected by erythropoietic protoporphyria across the globe?

About this questionnaire

The questions in this video will focus on the rare metabolic disorder erythropoietic protoporphyria (EPP), its causes, symptoms, diagnosis, and the impact it has on patients who have the condition.

The questions will challenge your understanding of the topic and we will provide links at the end to help you discover the topic in greater depth.

Please note that any information you provide will be retained in the strictest confidence. For our privacy statement please visit www.clinuvel.com/privacy-policy
Question two of seven:

Which molecules react to light to cause phototoxic reactions in EPP?

See Answer

About this questionnaire

The questions in this video will focus on the rare metabolic disorder erythropoietic protoporphyria (EPP), its causes, symptoms, diagnosis, and the impact it has on patients who have the condition.

The questions will challenge your understanding of the topic and we will provide links at the end to help you discover the topic in greater depth.

Please note that any information you provide will be retained in the strictest confidence. For our privacy statement please visit www.clinuvel.com/privacy-policy
Question two of seven:

Which molecules react to light to cause phototoxic reactions in EPP?

About this questionnaire

The questions in this video will focus on the rare metabolic disorder erythropoietic protoporphyria (EPP), its causes, symptoms, diagnosis, and the impact it has on patients who have the condition.

The questions will challenge your understanding of the topic and we will provide links at the end to help you discover the topic in greater depth.

Please note that any information you provide will be retained in the strictest confidence. For our privacy statement please visit www.clinuvel.com/privacy-policy
Question three of seven:

Can the initial symptoms of EPP be invisible?

See Answer

About this questionnaire

The questions in this video will focus on the rare metabolic disorder erythropoietic protoporphyria (EPP), its causes, symptoms, diagnosis, and the impact it has on patients who have the condition.

The questions will challenge your understanding of the topic and we will provide links at the end to help you discover the topic in greater depth.

Please note that any information you provide will be retained in the strictest confidence. For our privacy statement please visit www.clinuvel.com/privacy-policy
Question three of seven:

Can the initial symptoms of EPP be invisible?

About this questionnaire

The questions in this video will focus on the rare metabolic disorder erythropoietic protoporphyria (EPP), its causes, symptoms, diagnosis, and the impact it has on patients who have the condition.

The questions will challenge your understanding of the topic and we will provide links at the end to help you discover the topic in greater depth.

Please note that any information you provide will be retained in the strictest confidence. For our privacy statement please visit www.clinuvel.com/privacy-policy
Question four of seven:

Can phototoxic reactions last for days, or even weeks?

See Answer

About this questionnaire

The questions in this video will focus on the rare metabolic disorder erythropoietic protoporphyria (EPP), its causes, symptoms, diagnosis, and the impact it has on patients who have the condition.

The questions will challenge your understanding of the topic and we will provide links at the end to help you discover the topic in greater depth.

Please note that any information you provide will be retained in the strictest confidence. For our privacy statement please visit www.clinuvel.com/privacy-policy
Question four of seven:

Can phototoxic reactions last for days, or even weeks?

About this questionnaire

The questions in this video will focus on the rare metabolic disorder erythropoietic protoporphyria (EPP), its causes, symptoms, diagnosis, and the impact it has on patients who have the condition.

The questions will challenge your understanding of the topic and we will provide links at the end to help you discover the topic in greater depth.

Please note that any information you provide will be retained in the strictest confidence. For our privacy statement please visit www.clinuvel.com/privacy-policy
Question five of seven:

Which sources produce artificial light which can trigger a phototoxic reaction?

See Answer

About this questionnaire

The questions in this video will focus on the rare metabolic disorder erythropoietic protoporphyria (EPP), its causes, symptoms, diagnosis, and the impact it has on patients who have the condition.

The questions will challenge your understanding of the topic and we will provide links at the end to help you discover the topic in greater depth.

Please note that any information you provide will be retained in the strictest confidence. For our privacy statement please visit www.clinuvel.com/privacy-policy
Question five of seven:

Which sources produce artificial light which can trigger a phototoxic reaction?

About this questionnaire

The questions in this video will focus on the rare metabolic disorder erythropoietic protoporphyria (EPP), its causes, symptoms, diagnosis, and the impact it has on patients who have the condition.

The questions will challenge your understanding of the topic and we will provide links at the end to help you discover the topic in greater depth.

Please note that any information you provide will be retained in the strictest confidence. For our privacy statement please visit www.clinuvel.com/privacy-policy
Question six of seven:

According to the literature, which of the following impacts can EPP have on patients’ quality of life?

See Answer

About this questionnaire

The questions in this video will focus on the rare metabolic disorder erythropoietic protoporphyria (EPP), its causes, symptoms, diagnosis, and the impact it has on patients who have the condition.

The questions will challenge your understanding of the topic and we will provide links at the end to help you discover the topic in greater depth.

Please note that any information you provide will be retained in the strictest confidence. For our privacy statement please visit www.clinuvel.com/privacy-policy
Question six of seven:

According to the literature, which of the following impacts can EPP have on patients’ quality of life?

About this questionnaire

The questions in this video will focus on the rare metabolic disorder erythropoietic protoporphyria (EPP), its causes, symptoms, diagnosis, and the impact it has on patients who have the condition.

The questions will challenge your understanding of the topic and we will provide links at the end to help you discover the topic in greater depth.

Please note that any information you provide will be retained in the strictest confidence. For our privacy statement please visit www.clinuvel.com/privacy-policy
Question seven of seven:

What type of testing can determine elevated levels of free PPIX?

See Answer

About this questionnaire

The questions in this video will focus on the rare metabolic disorder erythropoietic protoporphyria (EPP), its causes, symptoms, diagnosis, and the impact it has on patients who have the condition.

The questions will challenge your understanding of the topic and we will provide links at the end to help you discover the topic in greater depth.

Please note that any information you provide will be retained in the strictest confidence. For our privacy statement please visit www.clinuvel.com/privacy-policy
Question seven of seven:

What type of testing can determine elevated levels of free PPIX?

About this questionnaire

The questions in this video will focus on the rare metabolic disorder erythropoietic protoporphyria (EPP), its causes, symptoms, diagnosis, and the impact it has on patients who have the condition.

The questions will challenge your understanding of the topic and we will provide links at the end to help you discover the topic in greater depth.

Please note that any information you provide will be retained in the strictest confidence. For our privacy statement please visit www.clinuvel.com/privacy-policy

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By completing this questionnaire’s form you agree to allow Clinuvel to use your data in marketing and sales activities, as well as future clinical trials and more questionnaires.

About this questionnaire

The questions in this video will focus on the rare metabolic disorder erythropoietic protoporphyria (EPP), its causes, symptoms, diagnosis, and the impact it has on patients who have the condition.

The questions will challenge your understanding of the topic and we will provide links at the end to help you discover the topic in greater depth.

Please note that any information you provide will be retained in the strictest confidence. For our privacy statement please visit www.clinuvel.com/privacy-policy